Parents Celebrated Daughter With Trisomy 18 Who Lived 50 Days After Birth

Cassy Fiano-Chesser
liveaction.org
2021-10-18

Two parents are speaking about their daughter with Trisomy 18, also called Edwards syndrome, who lived for just 50 days after birth. Her short life meant heartache and pain for them, but she received nothing but love and compassion.

In an interview with Metro, parents Jodie and Jamie explained that they were shocked to learn of their daughter’s expected short life span. Originally, the couple knew there were some issues, but they had no idea the extent of those issues. “We were aware that things weren’t quite right,” Jodie said. “We now know Margot had very typical physical features of a child with Edward’s syndrome: clenched fists, hammer toe, clubbed feet, low set ears, a small jaw, all things that are textbook features, so it is quite baffling no one saw any of those things.”

In July of 2020, Jodie had an induction, with both parents excited to meet their first child. But soon, things took a tragic turn, when doctors came into their room to deliver the news. “I thought she’d died,” Jodie recalled. “Then a doctor said she had some concerns but wasn’t definitive about what those were. You think of all the worst case scenarios and we knew something was quite wrong.”

A few days later, they received the diagnosis: Trisomy 18. The new parents tried to remain hopeful.

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